Cardiff and Vale University Health Board’s Young Onset Dementia Service is looking for help and support to create bespoke centre to support patients and their families.

03/04/2019

Cardiff and Vale University Health Board’s Young Onset Dementia Service is looking for help and support to create bespoke centre to support patients and their families.

The service based at Barry Hospital is in the process of being refurbished to create a centre appropriate for patients with young onset dementia. The team is seeking help and support from local businesses and the community to help with the project.

Often it’s thought that dementia only affects people over 65. But there are an estimated 2,220 younger people, aged between 35 and 64 living with dementia in Wales. Approximately 289 of these live in Cardiff and the Vale.

Joanne Wilson, Directorate Manager for Mental Health Services for Older People said:

“The new centre will provide community support, therapeutic group work, and day care facilities, to support our existing inpatient units. With help and support from local businesses and the community we will be able to create a vibrant, positive space. This will make a difference to the lives of our patients and their families, making our patient’s experience the most positive one.”

The centre will be modern and age-appropriate to meet the needs of our patient group and will enable patients to move around freely. There will be different areas inside and out for patients and their families to spend quiet time together, participate in group work, listen to music, play games or take part in activities.

The Young Dementia Service work together with people diagnosed with young onset dementia and their families. Delivering high quality, person focused support to  ensure continuity of care and responsiveness to often rapidly changing physical, psychological and social needs.

Dementia presents differently in younger age people and can include:

  • Problems with language, vision, personality or behaviour may feature as early symptoms, rather than memory problems.
  • People are more likely to still be working, have significant financial responsibilities and have children or parents to care for.
  • Remaining socially and physically active is especially important to younger people with dementia.
  • Acuity levels may be greater in young onset dementia, as people are physically more robust. Care alongside elderly frail people may present significant risks.

There are very few dedicated Younger Onset Dementia multi-disciplinary teams within the NHS in the UK. Within Cardiff and Vale UHB, our Young Onset Dementia team includes; nursing, occupational therapy, physiotherapy, psychology, dementia care advisor and medical staff.

If you can help with; garden furniture and shades, artwork, light boxes, activity equipment and any other support this would be appreciated by all. If you would like to help please contact Joanne Wilson, Directorate Manager on [email protected]uk or call 02920 715777.